HI EVERYONE!!!

My name is Colin. I am 8 years old and I have severe hemophilia A, a zebra bleeding disorder (that means it is really rare) with no cure. Sometimes it is hard to have hemophilia. I have to take a medication called factor to keep me safe. It is an infusion which hurts sometimes. And I’ve started to take it in my own arm, which can be really hard, frustrating, and painful.

I used to have to get infused every morning which made me late to school a lot but because science is awesome, I now only have to get it once a week! On Saturdays! But for some reason I’m STILL LATE to school!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Also, if you get hurt, you have to go to the nurse at school or even the hospital when other people don’t. I used to go to the hospital a lot. There was a time when I was going every month for labs- that wasn’t very fun (except for getting lots of screen time. DUH.)

Which brings me to the pros of hemophilia!

1.   I get to watch prestonplayz while I’m getting my factor medicine.

2.   I get to do FUN activities with my NEHA friends (AKA you!), including camp, holiday parties, and so much more!

3.   NEHA introduced my family to golf and now I love it! It’s my favorite sport!!

4.   Being with my NEHA friends makes me feel happy and I like being with people who know what it’s like to have hemophilia too. 

So, thank you for helping NEHA. It means a lot to me and my family. I hope someday they will find a cure for hemophilia or at least an edible factor, ideally chocolate-flavored.

I am walking on 9/28/24 to raise money for NEHA. So please, plz, plz,plz,plz, pleeeeeeeeeeease donate money$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ to NEHA so I can hit my goal today!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Thanks again!! Colin OUT!!!

Love, Colin