Thank you for your support for our ski-loving boys Lincoln and Cole! 

This year we’ve rebranded to Team Ski-mophilia to reflect 

our mountain loving boys that can’t get enough of skiing these days!

Lincoln and Cole have been through a lot over the years, from hundreds

of IV infusions, to emergency rooms and surgeries, to crutches and

ports, to missed birthday parties and days at home in bed. We are so

grateful to have better treatment options now that have really reduced

all of these things - they need to be rigorous about taking their

doses, be smart about activities, and still have tough days with

surprise injuries, but it’s not near as often.

This wouldn’t be possible without everything our healthcare team has

done from a medical perspective, and what the Colorado Chapter has

done from  a well-being perspective! Through education, community

building, and advocacy, both boys have learned to successfully

self-infuse which allows us to do all this treatment at home as well

as venture away from home. Often these days we'll walk into

the kitchen and one of the boys will be infusing themselves with their

medication without any help - a little surprising but also gives them

(and us!) the confidence that they can take care of themselves without

us being right there. Each year the mentoring and practice at Bleeding

Disorders camp has fostered those skills and their independence, and

that’s what brings us to fundraising today.